Blu Genes Foundation
Departments: Charities Associations, Educational, Health Self Improvement Beauty
The BLU GENES Foundation began because of a personal mission to find a cure for a rare and fatal genetic disorders called Tay-Sachs disease. But we quickly recognized a greater need. Many families are dealing with the impact of having a loved one who is affected by a rare genetic disorder. We know these families don’t care how rare the disease is, and we know they need hope.
As with many genetic disorders, there is currently no cure for Tay-Sachs disease. Although showing great clinical promise, gene therapy research is expensive, and there have been only a few clinical trials. Most of the diseases that are potentially treatable with gene therapy are rare, and they lack visibility and the funding support available for more common diseases.
The BLU GENES Foundation is raising funds to advance gene therapy and find a cure for genetic disorders, beginning with Tay-Sachs disease. We believe in offering hope where currently there is none.